Name: Joan Kerpan
Date Posted: 11:10, 24 01 2010
Message: As part of the Feel Peace program for my foundation, The Kyle Daniel Kerpan Foundation whose focus is to improve the quality of life for children with brain tumors and their families, I would like to put together a local informal dance event for our brain tumor kids and their siblings. It would consist of a DJ, food and just a lot of fun. It would be a special time where our kids could have fun and dance and just be themselves. It would be a time where they could forget about their tumors and treatments for just a few hours and where the siblings would be able to connect with other siblings and have a special time as well. It would be held in the Philadelphia area at two possible locations. So if local people could let me know if they think this is something they would like to attend, please let me know and then I can move forward and get it planned. Also if you could tell me when on the weekend you think would be the best time to do this that would be helpful as well.
Date Posted: 11:40, 22 01 2010
Message: Tech Support Request! Are you satisfied with the way this guestbook is working? I realize it is so limited (I can't let your emails be posted because of spam crawlers). I looked into getting a Squirrel Tales Face Book Page and that overwhelmed me (seems everyone wanted to be my friend before I knew what I was doing - I was sure never that popular in High School!).
Do you have other ideas that would enable you parents to contact one another quicker and easier? Please let me know.
Chief Cook & Bottlewasheer
Date Posted: 09:47, 21 01 2010
My son just hit 8 years in remission from ALL. He was 2 1/2 when dx. It all seems like a nightmare now but it is doable - one day at a time. Just trust your instincts. Be kind to yourself. You are stronger than you know.
Date Posted: 08:23, 20 01 2010
Message: Hi Mary,
I completely understand the heartache and chaos you're going thru right now. Nothing about cancer is fair. Be sure to take good care of yourself... keep your head clear, eat right & try to get enough sleep. You can't help your little girl if you get sick.
Cancer is beatable.
Name: Mary Sirianni
Date Posted: 08:24, 12 01 2010
Message: Somebody please send me words of hope and encouragement! Our 3 1/2 year-old daughter was diagnosed with ALL on Dec. 5th. We were hosipitalized for 30 days. WEe are home at the moment, but always ready to go back for fevers, coughs, etc....We are starting the consolidation phase of treatment on Wed. (tomorrow). I am SO scared of EVERYTHING right now....I guess it is all the unknown and the lack of control to make everything "ok" for her. Is there anyone out there who can send me some words of encouragement???? I feel so alone. I have become a stay-at-home mom and I feel like I stink at it! What should I expect from this next phase of treatment?? Will we get through it???
Date Posted: 14:09, 23 11 2009
Message: God Bless this organization
Name: Paul Coleman
Date Posted: 14:25, 04 11 2009
Message: Evan was diagnosed with melanoma at age 8. That was 2007. He has fought through 6 surgeries, 3 chemo, won the state science fair and still has time to both make everyone laugh and avoid his homework like th erest of the 6th grade. Inspiration when there are no answers, Strength at the weakest moments, and Faith by the bucket when fear threatens to drown us - that is our Evan.
http://e-nevusnotes.blogspot.com for more info on him
Thank you for this site, thank you for drawing this community together.
In His grip, by His peace
PaulEvan's story 2007 - Present
Name: Kurt D. Schlehlein
Date Posted: 23:05, 26 10 2009
Message: Our 7 year old daughter diagnosed with pre B ALL leukemia. Want to send out something positive to everyone. I feel mad and I don't feel like I'm doing anything constructive... Maggie is doing well from what we have been told and we are grateful to be so close to Children's Hospital in Milwaukee. My best to all. Mr. Kurt
Date Posted: 03:28, 24 10 2009
Message: Just found out my 1 1/2 year old has liver cancer. I am feeling sad but know all things happen for a reason. She was born at 29 weeks, weighing 1lb7oz. She has been happy and healthy ever since. She only weighs 16lbs but is very strong. Now this...it just makes me sad. She is our first and we love her so much. I see the kids in Oncology, happy even though they are going through hell. They are an inspiration.
Name: Lynn Ewald
Date Posted: 19:03, 08 10 2009
Message: Hi my daughter was diagnosed with ALL in 1/2008 - She was 6 years old, she is now 8 and has 5 more months of chemo and spinal taps. What an overwhelming 2 years but also has renewed my faith, strength & courage.
Shelby's caringbridge is: www.caringbridge.org/visit/shelbyewald
Date Posted: 00:34, 04 10 2009
Message: I just came across your website and read "You know you're the parent of a cancer child when..." Funny and sooo true! My son Jamison was diagnosed with leukemia Dec. 19, 2008.
Name: lucky mother
Date Posted: 20:32, 24 09 2009
Message: my daughter darian, 14, was diagnosed with ewing sarcoma of the pevic bone january 2009 and is on her way to recovery. the nurses have been so awesome that darian has decided to follow the career path of a pediatric oncology nurse. when i asked her why she wouldn't just want to go further to be a doctor, her reply was that she wouldn't want to be the one to give the bad news!!!
Date Posted: 22:06, 20 09 2009
Message: My son was diagnosed with ALL in 1996. I found the Squirrel Tales some time during his 3.5 yrs of chemo and loved the fact that it let me reach out and see that others were going through the same thing. The "you know you're a parent of" list was much shorter then, but still as funny.
Thanks for coming back.
Name: jan, Mom to Dillon
Date Posted: 02:09, 04 09 2009
Message: I've been told, that even though we are 7 yrs. out of treatment, that it is imperative that Dillon receive the H1N1 vaccine. This being due to the lifelong possibilty of recurrance of his cancer -chemo., low counts and H1N1 will NOT mix well. I urge you to speak with your Drs. and take precautions to protect your child and yourself. As caregivers, we must be healthy and strong - although the illness may be mild to moderate, it can kick some real butt ! I don't want it kicking my butt or that of my child's, whose butt I fought hard to save 7 yrs. ago.
I know the Media is guilty of doom and gloom, but this is a very real issue. I know a mom, a Pediatric nurse, who does not vaccinate... her kids are home schooled this year because of H1N1. Think about it...
I question the issue of innoculations. Dillon got Chicken Pox, smack dab in the the middle of Chemo./ his Rx'd innoculation for DPT killed off the Varicella = could have killed him. Are they needed... Yes. Are they scary ? -Yes. Has my kid survived a deadly Brain Tumor, YES ! Will my kid get the vaccine ? Yes, he will, and so will I.
Please, speak with your Drs. I'm goin' for it !
Prayers and love to all,
jan, Mom to Dillon
Name: Tracey Cruise
Date Posted: 23:30, 31 08 2009
Message: Wow, it has been so long since I posted and still see familiar names...Gary and Debby - so glad this site is still going strong - it was what kept me sane when Jay was in active treatment - I am very proud to say he is a healthy, strong young man, soon to be 22 and just finishing his last term in the Primary Care Paramedic program - I cannot say thanks enough for this site - no matter how long out of treatment or how long in remission, we still live in that "cancer" bubble.
Name: Jan, Mom to Dillon
Date Posted: 01:04, 15 08 2009
Message: Been awhile, all is well. I could swear that he grows an inch overnight ! Voice has dropped, goes up a squeak and levels off... we laugh about it ! We are grateful everyday for his life, for the skateboard episodes, the crazy bike rides in our mountain area ... things we couldn't have imagined 7 years ago. Going to his first concert in Stockton tomorrow... Bob Dylan, Willie Nelson and John Melancamp -he rocked to their music thru Radiation and still rocks thru the MRI's. A fitting end to his saga - we're 7 yrs out. On to 6th grade, big kid on campus, he didn't get to graduate from kindergarten, but he's moving on... Mom's and Dad's - hold faith in your Drs., hold faith in your child, hold faith in the Lord, and hold faith in yourself. Your strength is their strength. Best wishes and God's Bless All.
Jan, Mom to Dillon
Date Posted: 07:07, 22 07 2009
Message: Just found this site, my granddaughter, (shortest story) dx 2001(4yr 8 month old) pilocytic astrocytoma, first neuro could not remove, second neurosurg removed most( we were told all, three years later regrowth, removal again(shunt surg xtimes) Now one week ago MRI shows two new (she's 12) in totally different locations, one is on brainstem, one on front ventricle. We begin the jouney again. They want to do gammma knife we meet neuro oncol on July 30. We are "shell shocked" Any info would be appreciated.
Name: Amy-Detroit, Texas
Date Posted: 22:59, 16 07 2009
Message: It has been such a long time since I have visited your site. I am so glad to see it up and running again. I am Waylan's mom. Waylan was dx with ALL leukemia in January of 2002. He was 2 years old. I can't believe it has been 7 years since his dxs. Waylan is an active 10 year old now. He is a wonderful athlete and a very smart little boy. I was reading the guestbook and my heart goes out to all these families. I just want to cry thinking of the times that Waylan went through and wish that I could do something for the families that are going through it all now. Waylan has been off of chemotherapy for 5 years now. He is in the ACE program @ Children's Medical Center in Dallas. I can say to the families, keep your faith and may God bless you all. Thank you Squirrel Tales for being there for me. God Bless you Debby!!
Date Posted: 20:21, 12 07 2009
Message: Hello my neighbors son was diagnosed leukemia at age 4 now in remission!!! They are always worried when he plays that he will damage his port cathetor is there any product available to protect the device so kids can be kids?
AND MY PRAYERS GO OUT OUT TO ALL YOUR CHILDREN!
Date Posted: 23:13, 07 07 2009
Message: Hi Debora,
Just back for a visit.. You are a gem.
Name: Debora Caron
Date Posted: 23:01, 29 06 2009
Message: Rebecca! I'm so glad you posted, I'm sorry to have lost track of you. Please send me your email (firstname.lastname@example.org
Name: Kathie Sherman
Date Posted: 00:53, 24 06 2009
Message: My 13 yr old daughter has Hodgkin's lymphoma and is in the middle of her chemo therapy. The listas for parents and teens hit home for us.
Name: rebecca cardenas
Date Posted: 04:55, 20 06 2009
Message: gee i really dont know what to say i havnt been on this sight sence my little man shortly got his wing and after that my life went down hill.i lost my only too girls i had i got in to doin meth so i would forget about it and they got adopted i ending up giving up my rights to them at least i knew i didnt have the right to rob them of a good chgance at life im just their mom not god so i did it it was hard 4me but im steal alive and i got clean and i dont c one of my girls but the youngest guess what the man who adopted her turned out to be a child molester and was molesting the kids in the fosteer home he didnt her o she says only god knows i find it hard to believe he would do it but i dont judge no one anyhow he got 25 years and the mom just gave me back my kid how cool was that god knew i deserve her but the state did come and ask why sence i had no right to her but they cant do nothing i have to pay my lawyer 4000 dollars but i will iam to get custody she has been with me a year gettin off the drugs was worth it i just wish it was that easy for my pancho he would be 10 this dec and he left me at 2 4 those who dont know from rhabdomayosarcoma he was a fighter his hospital this last xmas even got my daughter a sponsor 4 xmas how cool is that well im glad to be back its hard to come back but its a part of my baby gere hey wnted to say hi to debby hope to hear from youwell u all take care and thanks 4 lettin me in
Name: Juanita Wotherspoon
Date Posted: 09:51, 09 05 2009
Message: Hi everyone, its been a very long time since I was here, I lost a daughter in 1980 to leukemia, she was 5 and died 12 days after diagnosis and in 2001 my 2 1/2 year old grandson, Justin was diagnosed with leukemia, he is almost 10 and doing great. not realated to childhood cancer , my mom was just diagnosed with advanced lung cancer and I guess that c word has brought me back to check on all of you, best to all of you, Juanita
Date Posted: 19:36, 07 05 2009
Thank you for taking the time to read my post. I am a medical student studying Pediatrics in New Orleans, LA, and I am conducting research on treatment for children with cancer. This research will be used to complete my thesis. With your feedback, I hope to raise awareness as well as influence improvements in cancer treatment for children.
The survey should only take a few minutes of your time and can be accessed by clicking the following link:
Thank you so much for taking the time to participate in this research. I am truly grateful for your input!
Date Posted: 21:30, 02 05 2009
Message: i've been on this page a couple of times since my son was diagnosed with ALL. it has but a smile on my face when time are tough, makes hospital stays go by a little quicker. thank you for this site.
Name: Marilyn May
Date Posted: 19:09, 24 04 2009
I poked around some on this site which then led me to Nelda's site. I have been so blessed. Thank you my Friend! You have a tremendous gift. I am sure that God is pleased.
Date Posted: 07:03, 19 04 2009
Message: My best friend's little boy was diagnosed with lukemia a few months ago, and it has been an emotional rollercoaster for his family ever since. It may not be much, but my prayers go out to all the families who are going through this trying time.
Name: Kristi McCrary
Date Posted: 09:58, 06 04 2009
Message: I am a nursing student with 2 kids myself. This is a very cool way for parents to keep in touch and be encouraged.
Name: Joan Kerpan
Date Posted: 09:43, 26 02 2009
Message: It has been more than two years now since my son Kyle lost his battle to his brain tumor and now I am ready to begin my new role in life within Kyle’s foundation.
As I tried to write what our foundation would do, I wrote many words, changed many words and kept with these:
Each of these children … live a life different from those around them…they encounter many moments of fear…many moments of pain….and many moments of uncontrollable emotions….they live their disease each day of their lives…a disease that brings many constraints and many unknowns….their brothers and sisters live this disease right along with them…they all deserve a life that is better…that will provide some freedom from this disease….that will allow them to feel safe…that will give them a life where they can be accepted just the way they are…..a life where they can find calm, support and be able to feel a sense of peace from all that goes on around them…
In the weeks to come I will be reaching out to other brain tumor families for input on ways to help me accomplish the mission of Kyle’s foundation. So I am asking you all to join me on Kyle’s site www.caringbridge.org/pa/kyledkerpan it will be a place where we can share information and together make things better for our brain tumor kids.
Name: Candy Cameron
Date Posted: 22:36, 22 02 2009
Message: Thanks for this encouraging site! I have looked at it a few times now. My baby Ruthie was diagnosed with bilateral Wilms at 8 months old.
Date Posted: 20:16, 30 01 2009
Message: Many, many moons ago, (circa '98) I stumbled into Squirreltales looking for some answers to all the cancer questions I had..... and, I found more than I could've ever imagined. Much more.
The following is one of my favorites that I still carry in my wallet...
"What Cancer Cannot Do
Cancer is so limited.....
It cannot cripple love
It cannot shatter hope
It cannot corrode faith
It cannot destroy peace
It cannot kill friendship
It cannot suppress memories
It cannot silence courage
It cannot invade the soul
It cannot steal eternal life
It cannot conquer the spirit.
- Source Unknown"
it has always helped me to keep things in perspective, so, I figured it's worth a repeat now and again.
Name: Amber, Mommy to Audrey
Date Posted: 10:53, 19 01 2009
I just came across this website. My daughter was diagnosed at 2 years old with ganglioneuroblastoma. She had chemo and surgery to remove the remaining tumor. She is now a spunky energetic 6 year old 1st grader. This year will be her 5 year cancer free mark. I have enjoyed reading this website. ~ Thank You
Name: Debbie Janes
Date Posted: 13:32, 12 01 2009
Message: Hi, It has been a couple of years since I have visited this wonderful site. I am back again to try to get some advice. My son was dx with Medulloblastoma in 2001 at the age of 2. He is now 10 y/o and as energetic as ever. Thank-God! But he stopped growing. He had been on hormone shots for about 2 years. I recently stopped him because to keep battling with him every morning was getting old. Does anyone know of any homeopathic remedy or vitamin that might help? And to all you blessed parents going through what we have gone through, please have hope! My son, Chase has been in remission for 7 years. All of us on this site know and understand what you are going through. You are not Alone!
Name: Jamie Beckemeyer
Date Posted: 01:41, 08 12 2008
Message: My son Jacob 2 has ALL we just found out. Our web sight is the caringbridgehttp://www.caringbridge.org/visit/jacobbeckemeyer
Thanks for having this I love it and it helps me so much to be the strong mommy he needs.
Name: jan, Mom to Dillon
Date Posted: 01:10, 08 12 2008
Message: Just had the birthday party blowout for a 12 year old Medulloblastoma survivor. 15 preteen boys, 8 overnight = we survived ! Just as our son did. He thrives, he lives, has friends who more than likely aren't aware of his saga. That's ok with us. April MRI and PET will tell us if the 7th year is the magic year - I pray that it is.
California 5th grade is hard, he struggles - can't believe he's required to pass algebra in 2 years !
We move on with strength and determination and faith. I don't understand (none of us do ), why our children are stricken, or for that matter why is anyone stricken. It's just the way it is, something we are given to deal with, God moves in mysterious ways, so does fate, karma and destiny.
So, destiny in mind for our kids... go to www. Algerbrahelp.com. It works miracles !
Blessings to all, I pray for your comfot and peace.
Date Posted: 13:49, 26 10 2008
Message: Hi my name is Linda and my daughter was diagnosed with anapalastic large cell lymphoma at the age of 18 senior year in highschool. She has completed 1 year of aggressive chemo and has been in remission for alittle over a year. She is doing well concidering all. I however am still exausted Help!!!!!
Date Posted: 20:56, 16 10 2008
Message: We would like you to visit and consider joining the People Against Childhood Cancer community. We are a network of over 900 parents, friends, family, concerned citizens and childhood cancer organizations (CureSearch, Alex's Lemonade Stand and more) whose sole mission is to present a unified voice to raise awareness of childhood cancer. The website format is unique, you can have friends, post photos and videos, blog, participate in Forum discussions, start or join Groups that interest you, chat live with other members, and promote or learn about fundraisers. It's free, interactive and will continue to evolve.
While these features are nice, our focus is action to raise awareness of childhood cancer. One initiative is the Petition to Raise Awareness of Childhood Cancer . It has over 16,000 signatures and will be used to hopefully leverage a network TV special solely on childhood cancer or a similar high profile project. Other ideas and action items are presented daily in our ongoing effort to raise awareness.
It was the work of some wonderful, hard-working members from the group that got the article in The Big Picture (with the help of the writer, of course).
People Against Childhood Cancer
Date Posted: 23:53, 09 10 2008
Message: Glad to see the site is up again, Debby! Squirrel Tales was an important part of my son's three year battle with Desmoplastic Small Round Blue Cell Tumor of the Abdomen. Jacob fought bravely, lived with a determination that even cancer could not touch! He has graduated on to heaven in 03 at age 15. I will never forget those that battled with us!
Date Posted: 10:49, 02 10 2008
Message: 28 month old son has pilocytic astrocytoma(benign) diagnosed 8/26/08-98% removed 8/29/08 with lots of side affects
Name: Gwen fr Singapore
Date Posted: 01:25, 20 09 2008
Message: I, myself, am fighting cancer bravely. Although I don't know what awaits me, I fight it with to the very last as Chinese always say,"When the boat reaches the bridge, the bridge will automatically lay straight." I believe I will be another cancer survivor and will live to tell my story of how the battle started AND ended. Here's a youtube web feed where 15 famous singers such as leona lewis, mariah carey, carrie underwood, beyonce come together to sing a song, to stand up for cancer patients.
Date Posted: 17:29, 06 09 2008
Message: ...and there will be little whispers you will hear.
Name: Angie Melaas
Date Posted: 23:37, 04 09 2008
Message: I read out loud, even with no one left to listen, I laughed, and I cried. I will return.
Name: Christa Bailey
Date Posted: 21:03, 01 09 2008
Message: So true! Thank you for a great website that we can all relate to.
Name: Pattie of Wisconsin
Date Posted: 20:52, 01 09 2008
Message: My husband and I were told at the end of July that our once healthy six year old would need a BMT, after a summer of lots of test and putting trips upnorth on the back burner. People were surprised when we were happy to have a diagnosis but they didn't understand that we were fed up with watching our little girl wither like a flower only to find energy after a blood transfusion. We weren't happy about the diagnosis but at least we now had a path to follow. What has made the path even better at this point is our ten year old is a match. He is excited to help because 4 yrs ago his best friend was diagnosis with aplastic anemia and never found a match. Michael knows first hand what his marrow could be saving us from. Jim and I are scared because we don't know everything that is a head of us. I am hoping to find comfort in this site. Thank you for listening. Oh by the way our daughter has a 3-part diagnosis..Myelodysplastic Syndrome, Monosomy 5 and Fibrosisin Bone Marrow. Wish us luck our hard journey starts on the 8th of September.
Name: Jenny Smith
Date Posted: 20:30, 19 08 2008
Message: My son was diagnosed with ALL at 23-months. He just turned 4 years old in July and on Aug. 6th, he relapsed. We are now looking at a BMT...
I have to say that I have gotten more help from your website in the few minutes I have been on it than anywhere else. Maybe it is the way it is desiged, or the way you have written it, but it has helped - Thank you.
Name: Alisa Tanner
Date Posted: 14:42, 12 08 2008
Message: Our family needs all the emotional support and understanding we can get. Knowing there has to be other parents and kids going through what we are and will be, helps so much. This last March our 8 year old daughter was diagnosed with a cancerous brain tumor that has grown with her since she was a baby. It's down in the middle of her brain and has grown down by her brain stem. She is undergoing chemotherapy now and will continue unless things change. Because of its location the doctors can't remove it.
Name: jasmyn beasley
Date Posted: 19:26, 31 07 2008
Message: HELLO-I MYSELF AM A CANCER SURVIVOR. I WAS DX WITH ALL AT AGE 7. IM NOW A 16 YR OLD JR IN HIGH SCHOOL AND I TRY TO KEEP MY HEAD UP AS WELL AS MY SPIRIT. ITS HARD BUT IM IN A GOOD PLACE WITH A LOVING FAMILY ESPECIALLY MY GRANNI CRIS. I WAS GIVEN A SECOND CHANCE AND I TAKE ONE DAY AT A TIME. IM STRONG AND FOCUSED ON LIVING MY LIFE TO THE FULLEST WITH GODS BLESSING AND LOVE SUPPORT AND PRAYERS FROM FAMILY AND FRIENDS. IM NEW TO THIS SITE BUT I WILL BE BACK. GOD BLESS ALL. LOVE AND PEACE BE WITH EVERYONE. '' JAZZY BEE ''
Date Posted: 20:43, 30 07 2008
Message: Wow. A lot of familiar names recently...
Go Debby Go !!!
Just back for a visit...
...with even, yet another, gray hair.
Name: Debby Caron
Date Posted: 17:46, 19 07 2008
Message: How good to hear from you again, Stacy!
Name: stacy corazzini
Date Posted: 04:19, 19 07 2008
Our daughter Kayla was dx in 2000 w/ALL and this was a very frequent sight we visited for support. I am so happy to report she is doing amazing and has just celebrated her 6 th year w/out chemo! She is playing sports and living a "normal" 10 year olds life. I just wanted to say thank you for all the parents, grandparents, friends and family who have continued to use this site as a support system. Although it breaks my heart to still see so many families continuing to face this horrible disease, it is wonderful to know there is a continued support system where we can go when there are questions, concerns or small moments of laughter. Please know there is hope. I never thought we would get this far and we have! For all of you going through this most difficult time, know there is hope. For those of you who have battled the storm, remember to never forget where you've been. It will make you stronger and more appreciative about life, love, and laughter. God bless and its been a while...( 5 yrs) but I believe the quote said "stand hard."
Date Posted: 17:43, 30 11 2007
Message: I stumbled across this site while doing some research and love it!!! Truely a great job at work here... although my daughter is not a teen, (she's 26) I am the mother of a child with cancer...and that along is devasting... Just wanted to say This is a great site, thanks and keep it up pls.
Name: Rick and Amy Bucher
Date Posted: 21:18, 28 10 2007
Message: Practical site, especially for those of us still recovering from the shock of dx and the first hospital stay. Thank you.
Name: Kristi Cannon
Date Posted: 23:56, 15 10 2007
Message: I just found this site and ohh my goodness I wish I would have found this sooner! My son lost his battle to Neuroblastoma on July 29,2007 after 2 and a half years. I am going to forward this email off to others. Thank You!
Kristi- Kody's mom
Date Posted: 22:41, 28 08 2007
What kind of cancer? My son is a 13 year leukemia survivor.
This is THE BEST site anywhere!
Name: tabitha bledsoe
Date Posted: 06:09, 21 08 2007
Message: I'm a newbee (as one mother refered to me in the hospital) My 3 year old daughter Skylar Carleen has just recently been diagnosed with cancer. I havent touched the computer in 12 weeks for fear of what I'd find, I'm glad I found this web-site, it has enlightend alot of dark paths. Thanks!!
Date Posted: 16:47, 29 07 2007
Message: I would like to hear from some parents of children that has been through Wilms Tumor. Just some helpful suggestions, and just talk. Also anyone who has any information. Hunter is about 3 years out from chemo,and doing very well. Thanks, Shelia
Date Posted: 19:27, 27 07 2007
Message: AJ's mom, FORUMS! That is what I was trying to think of! I also miss them terribly. I have to believe they were the main reason most people came to this site. I notice that there are fewer hits to the site since they left as well. Please bring them back! It was so valuable for parents with kids in similar situations with similar diagnosis' to find out the best things for their child in a more specific way than general "cancer" comments.
Date Posted: 13:23, 23 07 2007
Message: I found this site as a link from another and sure wish I had seen the first 100 3 summers ago. Still funny now but then I needed the laughter even more so than today! (every other week in the hospital for 5 days of WAY high doses of methotrexate) They are so true and so funny and yet a year after my 6 year old finished treatment so poignant. They make me thank God for the people around us who helped and prayed and understood.
Date Posted: 19:49, 25 06 2007
If you know you signed this guestbook and the entry is missing, I was dinking around and lost a chunk of them. I know what I did and I won't do it again.
Date Posted: 19:46, 25 06 2007
Message: Hey! I am a thirteen year old with a brain tumor and I was looking around on the net one day and came across this site, how cool!! I really liked the "You Know You're A Teen With Cancer..." They were all so true! My favorite parts were the throwing up stuff- because of where my tumor is, it makes me throw up a lot. That plus chemo means I know a lot about puking- haha!!
Anyways thanks for this site- it's been a great boredome buster the past few days in the hospital!!! Also, I love reading about other cancer kids...I am not alone!! :) Have a great summer everyone and keep fighting!!!!!
Name: Rosaleen Perry
Date Posted: 19:44, 25 06 2007
Message: Originally Posted: 13:18, 23 06 2007
Yeaaaaaaah it's back!!! I have missed this site sooooo much!! You will NEVER know how much Squirrel Tales means to me, and how this website got me through losing our "mighty boy" Jack in 2001.
I found solace here, people who understood what we were going through. Our son Jack wasn't lucky enough to win the fight, but for those of you still in the trenches............ DO NOT GIVE UP most of these kids make it!!! and Jack is now the angel up above who can help!!
Squirrel Tales and all the people on this site walked with me through our journey and I have made many good friends from here, THANK YOU DEBBIE for coming back............and on a happier note...........June 16th 2005, God (and Jack) sent us Sarah Jane Perry a wonderful little girl who is so full of life and quite like her brother, who has helped us laugh again, and smile again.....and live again!!
Mom to angel Jack 11/1/96-9/19/01.............TRULY A MIGHTY BOY
Date Posted: 19:42, 25 06 2007
Message: Originally Posted: 10:58, 20 06 2007
Thanks Sandi. Hunter is playing baseball this year and he has made 7-8 year old All-Stars. So we are very busy with practice. Hunter is a very good athlete. I love him sooo much. I also have 6 other children,so we are busy doing so much. Three are in college and three in high school. Hunter will be in 2nd Grade. God is so good to us and He loves us all so much. I know God hears my prayers and He has gotten us through soo much. But you know htose times when your child has unkown fever or leg pains you just get so sick at the stomach....and then they just get up and go off running and laughing. It is good to know that everyone still has the worries. Thanks for talking with me, this has help alot.
Date Posted: 19:39, 25 06 2007
Message: Originally Posted: 20:32, 19 06 2007
Message: Hi! My son was 4 years old when he was diagnosed with Wilms tumor, He is now 7 years old. He is very smart, athletic, and energetic. He has a 6-month follow up in about 3 weeks...and I seem to get nervous. Just wanted to talk.
Date Posted: 19:36, 25 06 2007
Message: Originally Posted: 10:24, 18 06 2007
Message: This site has helped me realize I am not alone in this crazy battle!!!!
Date Posted: 19:34, 25 06 2007
Message: Originally Posted: 17:14, 02 06 2007
I am so glad to see the guestbook back up and running. Have enjoyed this webpage since almost the beginning. Lots of valuable and helpful information. My son was dx with ALL in 1993 at age 7, is now 21 and a senior in nursing school.
Sometime you have to take it a day, an hour at a time but don't give up!!!